By TAMMY BUCKLEY and KRISTIAN SOUTH - Sunday News | Sunday, 19 October 2008
The two-year-old Wellington girl has captured the hearts of the nation, with her dedicated parents Shanell Christian and Jason Milne continuing to spend as much precious time with their daughter as she slowly dies of the neuroblastoma cancer that has riddled her body.
"We're now just really playing it hour by hour," Shanell told Sunday News yesterday.
"It used to be months, weeks, then it was days. Now we are into the hours every hour is a bonus.
"She is battling on but she's pretty sleepy, she's not doing a whole lot. We appreciate every hour we have with her now."
Sunday News last week told the story of little Kyah and her family's heart-wrenching plight, which is documented in an online journal written by Shanell.
The family had moved Kyah's third birthday party forward a month to last weekend, to give the hundreds of people touched by the precious youngster a chance to say goodbye.
"She wasn't expected to live past last weekend. We'd all resigned ourselves to saying goodbye but she's still here," Shanell said.
"She's playing by her own rules at the moment."
Shanell said the family were unsure how much longer Kyah could hold on.
Since our front-page article last Sunday, Kyah's online journal has become bombarded with messages of support.
"Her journal is getting so many hits. We used to get 14 or 15 comment but now we're in the 60s. The support is huge, absolutely huge."
Well-wishers have donated more than $2400 to the Child Cancer Foundation.